darth

Darth Vader : Luke, I am your doctor, you suffer from Delusions of Parasitosis, you are DOP.

luke

Luke: No! That’s not true! That’s impossible.

Darth Vader : Search your feelings… you know it to be true…

 


All kidding aside this is probably going to be one of my most unpopular posts.  This blog post is going to take a hard look at where we are right now as a Morgellons community and it isn’t pretty.

First, let’s take a look at the claim that we are DOP. There is only one reason that claim can continue to be made and that is because we as a community haven’t offered any valid information to the contrary. To my knowledge, there isn’t a single peer review article written by any Morgellons researcher that has appeared in any medical journal along with real results of scientific tests. Correct me if I’m wrong here, but after all these years not a single paper, not one, has been published. And with the red and blue fibers being so easy to obtain and year after year ticking by with no new information it’s nobodies fault but our own.  Okay, you could make the argument that doctors diagnose us with DOP from across the room without even looking at us and that would be a valid argument, but that is standard protocol and they are taught that in medical school. Knowing that what do we expect?

There are four blog posts from a guy calling himself PalMD and to be honest I find the arguments going on in the comments on his posts very revealing about the problems we are facing more than anything else I have read.  I think a large part of the blame needs to be laid right at our very own feet, and rightly so. Here are the blogs posts (you will learn a lot from both sides if you read the comments)

 

 

Now, you can go up there and post all kinds of nasty comments and scream from the top of your lungs that this is real, but why bother. Besides, you will only continue to discredit us. If I didn’t have Morgellons myself I would never believe you, here’s why. I would do some Google searches to find out more information about Morgellons and much of that information would be found on Morgellons forum sites. Then, after about 45 minutes of surfing I would walk away with the opinion that “those people” are absolutely certifiable (and I was one of those people once who posted on the forums until recently that played a role). I am not blaming, the fact is what we experience is quite bizarre. I was recently criticized about taking my thoughts to this blog and not posting in the forums as a peer along with others. But the very reason I removed myself from the forums was to maintain some kind of credibility. Surely if you are a Morgellons sufferer and have been to the forums you know what I mean. Much of what is discussed is way, way, way …. out there. Now, don’t get me wrong, one of those “way out theories could be true” but until it is proven having my thoughts lumped in with all the others makes my job harder. The forums do act as a support group and help many get through their day to day struggles which are very real. Some people are no doubt being driven somewhat crazy from being turned away by medical doctors while suffering from such a horrible malady. The reason I have my own blog is so that I am not lumped in with the bizarre conspiracy theories and alike. Am I saying I am smarter than others? Certainly not, I have seen some very smart people posting on the forums that I think have very solid theories. I am trying to stay grounded in the facts the best I can so that we are taken seriously. I think the fact that Dr. Wymore addressed my theories on this blog means enough people found them credible enough to write to him such that he felt the need to address them. If you want to be addressed seriously you have to be able to be taken seriously. I am not a scientist, but I play one on the internet because no other credible information is forthcoming from anyone at all.

Now some of what is said by those who don’t believe Morgellons is real on PalMD’s blog are just cruel for cruel’s sake, and I don’t agree with the comments that attack and belittle Morgellons researchers at all. On the flip side, there are what appear to be personal threats made by a Morgellons sufferer against PalMD which I totally condemn. Those are worse than adhomenum attacks. This person even goes so far as to say he will contact this persons employer. What ever happened to freedom of speech? I certainly will not go up there and comment on his blog, there is no point. However, there is some validity to their arguments. We have no real evidence, zero. Don’t get me wrong, researchers have published articles such as Dr. Staninger who I admire greatly as well as Dr. Wymore but there are no scientific peer reviewed papers with test results and a like with published findings of what is being found in the blood, bacteria, fungi or fibers. Basically, everything that has been said about Morgellons at this point is mere speculation until test results are peer reviewed, duplicated, and validated. How many years has it been and we still don’t know the chemical composition of the fibers? And in today’s world that is just hard to believe.

Now, this might come as a surprise to many of you but currently my hopes are with the CDC. I am learning to check my skepticism at the door and assuming the best out of everyone involved until I find out otherwise. The CDC is likely going to publish real findings including what is being found in the blood work, parasitological findings, and so on and in a peer journal.

There are all kinds of camps and factions that support the various researchers and here is my advice. Whatever horse you are betting on encourage them to publish real results and not just make statements in articles, because these are no more credible than my blog postings. I am not sure why researchers couldn’t enlist a college to have some of it’s students study the fibers, seems like a great little project that could be done for absolutely free by inquiring, bright, young minds. Our house is in disarray and until we clean it up we are never going to be taken seriously. One way would be to destroy the camps, start working together, share findings, and publish real scientific papers. I would help but I am not a scientist. I’m not holding my breath but I hope I am proven wrong. However, I am looking forward to the CDC report. At this time, I see it as our best hope.

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Comments on: "Time for Some Inner Reflection" (44)

  1. Very sobering post.
    And you hit dead on – the morgs community has no credibility w/ the outside b/c 1) there are no solid, verifiable, scientificly supported studies, and 2) true or not, the type of things we discuss are quite “out there”.

    I’m totally in agreement. If I never had this whatever and read about gov’t conspriracies, chem trails, aliens, nano-tech, and all the other stuff out there, even if one turned out to be true, I’d just write them off as bunch of loons.

    BTW, I have ZERO hope in the CDC study. I believe it’s a sham study just to shut some ppl up. Seriously, what can you do with < $400,000 of grant money? I hate it when I’m wrong (don’t we all?) but I hope to be proven wrong on this one.

  2. And BTW, how did you know that’s my fav scene in one of my fav movies? :-)

  3. Mr. Common Sense said:

    Kixx, I agree the amount for the study is embarrasingly low. However, once the results are published you will find other scientists and doctors jump into the fray to join the search no longer afraid of being labled or sent out to the kook fringe. Once the CDC publishes their findings the door will be open to the mainstream scientists who can then either challenge or do more research to further our knowledge of Morgellons. Believe me, I was skeptical too and not so long ago. But the reality is until the CDC publishes, most folks interested, and there are many, are sitting on the sidelines.

    As far as that scene goes, my sons absolutely love star wars, what young boys wouldn’t. They find it hard to believe those early Star Wars movies (which are the best) were made when I was a child. They think all the cool stuff was made in their time – LOL. Of course, I like it too.

  4. The best special effects are ones done mechanically and if needed uses CG minimally to complement, not the 100% replacement by CG we see today. I miss those days… Jarjar Binks was just horrid.

  5. I find this a useful dialog, but i worry about this:

    And you hit dead on – the morgs community has no credibility w/ the outside b/c 1) there are no solid, verifiable, scientificly supported studies, and 2) true or not, the type of things we discuss are quite “out there”.

    followed by this:

    BTW, I have ZERO hope in the CDC study. I believe it’s a sham study just to shut some ppl up.

    Making progress with this type of thinking will be rather difficult.

  6. Mr. Common Sense said:

    Hi PalMD, I know we come from different sides of the coin but I appreciate the debate your posts have brought about. The comments on your blog posts have caused me to pause and try to figure out what is truly being said, once all of the emotion is discarded. I think folks need to civil and debate with facts rather than attack ones person, because if you have to do that you must be losing the argument. If you click on my “All Articles” page on the upper right you can see my blog posts. I’m just a laymen who is doing well using all natural products while hoping for some answers.

    There is a lot of skeptism from our community about the CDC study, a lot of it because from what I gather Kaiser Permanente tried to supress lyme disease out there. That and of course 400k is the price of a crappy home in California (or was at the time). Also, suppose this was the result of some bioengineering accident due to our new GMO Pharming techniques. Such a widespread disease springing from this basically unregulated science experiment would be extremely alarming to say the least. Are we going to put a 50 year moritorium on the bio engineering field? Not likely, there’s too much money involved. Now, I’m not saying that is the cause of Morgellons, but try to see things from our side too. Remember, the CDC did take the monies Congress granted for it to study CFS and blow it on other things because they didn’t believe CFS was even real.

    The Ongoing Saga of the CDC’s Use of CFS Research Funds

    The CDC reported to Congress that it spent almost $22.7 million for CFS research, but the Inspector General’s report showed only $9.8 million or 43 percent of the funds, was used for that purpose. More than $8.5 million was diverted to non CFS-related research, and $4.1 million is still unaccounted for. The GAO is now beginning the process to evaluate the consequences of the CDC’s actions.

    The head of the CDC later apologized. But look at the amounts, 22.7 million for CFS research and 400k for Morgellons, we take what we can get I guess. Having said all that I am still hopeful.

    Modified: Thank you for you latest blog post titled “Every time I think I’m out…”. Don’t write us off yet, lets wait on the science from the CDC. Then we’ll know more …

  7. Hi, excellent post.

    a point regarding the CDC grant.

    Why do you think $400k is not enough money? How much money do you think should be spent? How much money do you think it takes to do a preliminary study that e.g. collects data on patients and treatments from across the country? It’s not like you can even start testing treatments until you’ve done some sort of initial study to assess the current problem and attempt to define a common, unique set of symptoms. If the initial study shows that there really is some identifiable disease here then more funds will be forthcoming. If not, then they haven’t spent millions of dollars of taxpayers’ money that could pay for other things.

  8. One remark, a $400k grant will carry a post-doc all the way to tenure, especially if you have a relatively “cheap” research subject like identifying a parasite in outpatients. You can be sure that if there’s even only a whiff of reproducible results, people will flock to the subject. Proving existing opinion wrong on MD with a SEM of the culprit gets you on the cover of Nature, and a serious look in Stockholm. But the lack of published results is very troublesome from that point – researchers live for publications. It doesn’t count unless you get it published. So if people spent years trying to identify a physical mogellon and are not publishing the results, you’re in trouble with the hypothesis.

  9. Mr. Common Sense said:

    Mu, I totally agree. This is why I think the CDC’s report will open the doors, assuming they find some kind of connection that ties us all together, you are right, there are exciting chances here, opportunities for grants and people to make names for themselves. Besides, they could wind up ending the misery that is ruining so many lives, and if it turns out to be as widespread as we think, doing the world a great service. So, this is why I have come around to placing my hopes on the CDC, that and of course no other papers have been published.

    In some of my research into all of this I have read some incredible papers on how sophisticated bio-engineering and GMO science really is, the fact that we don’t have identification of the fibers astounds me. Compared to some of the amazing science papers I’ve read it should be relatively easy to determine their make-up, but then, I’m not a scientist.

  10. This is why I think the CDC’s report will open the doors, assuming they find some kind of connection that ties us all together…

    This is also a problematic statement. Is there any negative finding from any body that you would be willing to accept? What if it turns out “morgellons” isn’t a single problem, but many and that there is no unifying factor?

  11. Mr. Common Sense said:

    Okay, PalMD, this is getting a little absurd. A person posted on your latest blog about a natural remedy and was torn to shreds. Let me ask you this. Are there any natural things that I can go buy at Whole Foods Stores from their health section that are as strong or stronger than say Amoxicillin? Do you believe that non pharmasuiticals can kill fungi and bacteria as well or better than pharmasuiticals? Answer me that question and I’ll answer yours. I would think about it a while before you answer because if you’re wrong you get no answer from me.

    Also, compare the mocking responses on your latest thread to the responses on this thread. Which group is more civil here? We are trying to accomplish a little more here than try to top the next guy with the funniest one line quip.

  12. I have little interest in incivility, but i pretty much allow the wild west on my blog. i will certainly admit to occasional incivility on my part. Mea culpa.

    I’m not sure where you’re going with the amoxicillin question, or what it means, but I’d be happy to answer if I did, or at least to get the answer from someone knowledgeable (abel pharmboy at scienceblogs.com/terrasig is a natural products researcher…very competent).

  13. “Do you believe that non pharmasuiticals can kill fungi and bacteria as well or better than pharmasuiticals?”

    Wait, i think i get the question, but it’s sort of not a valid question. The answer is that whatever kills something in a particular environment kills someone in that particular environment. Vancomycin, and antibiotic, has little effect on most infections when taken orally, but when given intravenously is able to cure many gram positive infections. Rubbed on the skin it does nothing. Dose and route are very important.

  14. (*someone=something)

  15. Mr. Common Sense said:

    You didn’t answer my very simple and straightforward question, instead you tried to complicate a simple question a child could understand, it’s not a trick question. I know the answer. I’ll tell you what though. Let’s just wait until the CDC report comes out and see what it is they have to say. One study does not definitely rule in or out anything most of the time unless they find a dead ringer. I think the CDC study is only a beginning but it will push us in the right direction. Many deseases have taken decades to identify, some still have unknown causes so let’s just wait and see what it is they come up with. Check back when the report breaks and you can see my response, it won’t be knee jerk though. Best of luck to you …

  16. Mr. Common Sense said:

    This is an interestig comment from one of the worst articles ever written on Morgellons ..

    http://www.scientificamerican.com/article.cfm?id=morgellons-disease-parasites-skin-psychiatric&posted=1#comments

    Shameful reporting is what this is. Author, do your homework! Is this the “Scientific” American or a gossip rag? Reporting should be unbiased and report all sides of an issue. I will soon publish a study of 122 patients with in-office visualized subcutaneous fibers consistent with Morgellons disease.. I have treated over 300 patients with this devastating illness and the situation is urgent. I invite Dr. Cappello (if he is sincerely interested) to come and observe my patients’ skin lesions with lighted magnification and see if he still thinks this is a delusion or self-inflicted. I am frankly tired of hearing “experts” give an opinion on something they know nothing about. Please consider doing a follow-up to this article which gives the reader a truer and more balanced picture of what is really going on with Morgellons disease.

    Ginger Savely, DNP, RN, FNP-C, TBD Medical Associates, San Francisco

    I hope Ginger Savely does publish such a report, we need more information …. PUBLISH, PUBLISH, PUBLISH …

  17. I’ve often read doctors’ accounts of what they perceive morgellons as, as many of you have… and unless I know outright from the beginning that the doctor is an “understanding” doctor or “on our side”, I often feel a bit wary prior to reading their accounts. I think one positive thing I have often noticed are their acknowledgements like “They (patients) are clearly suffering”, which for a split second gives me hope that they do understand what we’re going through… then often it’s dispelled by what they really think of suffers, “My interpretation is that the symptoms are most consistent with a psychiatric condition.” or “They (skin lesions) are self inflicted”, meaning that our sufferings are self-inflicted and ultimately, we’re a bunch of kooks. It’s not our skin that needs help, it’s out minds.

    I wish I was in a dark corner of my room hittin some crack and picking on my skin with a swiss army knife. Ok seriously… what I’m having a hard time understanding is how they can make blank, consenquential statements like that without actually witnessing someone self mutilate their body (or have they?).

    I’m sure any internet saavy person has seen this by now:

    But it’s really frustrating when I watch doctors mis-diagnosing morgs as a delusional, self-inflicted syndrome and what’s worse is that it’s on a national stage like ABC news.

    Let’s say that the legions are self inflicted by scratching and the fibers are manually inserted into/underneath the skin somehow… my biggest question is that where then are these delusional patients getting these fibers in the first place to commit such an act? The very fibers doctors and researchers like Dr. Staninger and Wymore have analyzed with electron microscopes and DNA sequencing but have not been able to identify them as any known substance. I’d have an easier time believing that patients somehow got access to a uranium ore and put a small piece in their self-inflicted lesion than trying to reason out how/where they are getting these mystery fibers that are still unknown to man-kind. I know, I’m preaching to the choir…

    I do appreciate a comment made in PalMD’s blog titled, “Every time I think I’m out…”. He says in point 3, “The suffering is real—that is the clearest truth.” and did not follow-up with the oft-expected “and the patients are delusional”.

  18. Oops, I didn’t know linking to youtube would insert a whole youtube window… Mr. CS, if bothersome, please remove. Thx.

  19. Actually, there is research done by some institutes on the issue of Morgellons.

    See http://morgellons-cure.com/disease-research.html for one example.

    For me, I am still skeptic. Too many of the “morgellons” look just like lint trapped in some scab or wound.

  20. Mr. Common Sense said:

    Hey, just for kicks check out this new product line. It appears Kraft is making a new brand of food especially for us:

    http://www.nytimes.com/2008/02/05/health/research/05kraf.html?_r=2&scp=1&sq=kraft+worms&st=nyt&oref=login

    Maybe it’s not such a bad idea, they can call it “Morgaroni” – catchy huh? A whole new brand of food for Morgie’s …

  21. LOL. Is it all organic and most toluene free?? :)

  22. LOL. Is it all organic and toluene free?? :)

  23. Darth Vader : Search your feelings… you know it to be true…

    Diagnosis based on feelings are irrational.
    Diagnosis based on observable facts are rational.
    Diagnosis ignoring observable facts are highly suspect.

    MrCommonsense, you are a scientist, just not a government certified one. Check out Freeman Dyson for example,”…with a BA degree in mathematics… His most useful contribution to science was the unification of the three versions of quantum electrodynamics … Cornell University made him a professor without bothering about his lack of Ph.D. He subsequently worked on nuclear reactors, solid state physics, ferromagnetism, astrophysics and biology, looking for problems where elegant mathematics could be usefully applied…” http://www.sns.ias.edu/~dyson/about.html

    The simple act of Dr. Wymore responding, even if only with his opinion, as a result of your work supports the fact that – you – are – a – scientist! Or, if you prefer the more modest term, Independent Researcher.

    Waiting & trusting in the CDC for answers is like trusting the police to investigate themselves for wrong doing. The police almost always find things were done correctly & their actions are often not to blame even though their actions resulted in death & destruction. Even if they find they are at fault, the consequences for the police are usually only administrative leave with pay as punishment.

    I used to hear people say that if a space shuttle exploded there would be all kinds of dangerous fallout & cancers as a result. When one did explode, the focus was all on the loss of the crew & as far as I recall, nothing was ever studied about the effects from the materials spewed over us all. Nothing? No harmful consequences from the fallout? None?
    We know they use substances similar to morgallons in jet fuel [did those silicone cells ever get ruled out?] it is quite logical to expect they would use similar substances in rocket fuel. And, just as with the police (when they investigate themselves) if there were dangerous fallout does anyone really think they would come forward knowing it would jeopardize the entire space program? However, a quiet cleanup might take place.

    People keep asking for proof. How much proof do they need? Does it really matter where the proof comes from, so long as it is proof? Take the Gitmo torture scandal for instance. I have read other blogs where people see photos the government has released and the perpetrators (who plead guilty) acknowledged they were real, never-the-less, people still continued to deny their authenticity & claimed they were fake and clamored for, “real proof” that atrocities had taken place. Look at how, even now, releasing further, “proof” is delayed by the government as it investigates itself, enabling many people to cling to denial & continue supporting torture & the trials taking place outside our justice system at the whim of the government. It is simply not n the best interest of the government to release damaging facts, so it will not, unless people of good moral character step up.

    There are some good people working in government, but there may be many more who have lack of morals, ulterior motives & bad intentions. Perhaps you are hoping some of the good people are working at the CDC? The same CDC that lost all that money? Has the CDC ever been involved with prior cover-ups of wrong doing?

    I’ve never been to the forums you linked to. This is the first I’ve seen of the Nightline show. The Dr.-like person on the Nightline show seemed to almost suggest people do not get pimples & the human urge to, “pop” one is delusional or some such. I have had a number of times where I would have someone I knew (only slightly or a little better) point out, “eww, nasty zit – dude” and I had no idea I had it. An impossible to dislodge pimple. Was it the beginning of one of these morgallon sores? The resulting sore & any scratching/scraping is not the problem. What causes the physical bump in the first place, that is the problem. That is a bit of information that needs to get out there more, IMO. That, and getting people to notice their surroundings more.
    I’m not sure I ever even had the creepy crawling feeling I read about so much. Just mega-stubborn pimples that don‘t go away & are not diagnosed as cancer, or anything else, by a government certified doctor. After taking a shower & getting into bed, was it only water from the shower dripping out my ear as I lay in bed? I do not know.

    And that is just the external symptoms… internally who knows what happens in the future. I would think insurance companies would fund research, but they too have a lot to lose if this is something they have to pay out more for in coverage & disabilities etc…

    I like your idea of using college students. Perhaps the morgallons sufferers could all chip in and create a reward fund to offer them to study it. Money motivates & even small amounts can motivate a group of college students. Baby-steps. Separate & independent seems better as far as finding a cause & solution goes.

    I wish my last post didn’t seem so knee-jerk. I did spend a fair amount of time & thought to it. I just wanted to get my ideas out there. I’m more of a, “brainstorming for ideas” person. I have learned, people who have something to hide or who benefit from maintaining the statis-quo hate brainstorming & people like me. Seeking solutions, identifying problem points, revealing facts, & related occurrences tend to flush out false ideas & the men who hold onto them.

    I feel compassion for many & especially the young people at places like the supermarket checkout who obviously have this. They deserve at least a chance at having a normal teenage life. I‘ll bet they are told it is normal… as the old timers say, hogwash!
    Maybe my writing has been a waste of time, or perhaps what I’ve written will motivate someone who can make a difference for these young people? Perhaps it will be you?
    If you found things that cure or ease the suffering of a great many people, to them & many others, that would have far more credibility than any government statements or officially issued certification.

    Where is your pay-pal (lump sum & by-the-month) icon for contributions so you can focus on your research &/or direct it to activities you consider worthy? Just a thought.

    How does one fight a no-see-um?

    Now I’ll go try the soaps, the laundry detergent, eat some raw food (onions) & chug a glass of cool refreshing 100% cranberry juice… yum. lol. Fingers crossed.

  24. Mr. Common Sense said:

    Clark, Thank you for Awarding me the Honory Degree of Scientist !!! In all honestly, I appreciate your feedback. Here’s something interesting, PalMD just couldn’t help himself and posted yet another thread on Morgellons, here it is:

    Morgellons – What Fibers?
    http://scienceblogs.com/whitecoatunderground/2009/05/morgellons—what_fibers.php

    There appear to be some people that read his blog that have the ability to actually find out what the fibers are. It is a science blog after all. We can only hope they are not fooling around and are serious. For now I take them at their word. I know alot of folks read his blog because PalMD put a link in one his posts back to mine and that has generated a lot of traffic.

    Someone that goes by “Pete D” offered to have the fibers analyzed, here is the response from a Morgellons Sufferer.

    Pete D. , as I posted on your other page, I accept your offer. Please contact me directly to make arrangements. Thank you so much! Gwen Simmons, RN

    This might actually prove quite interesting …

  25. I’m rather hoping that that dialog continues.

  26. Mr. Common Sense said:

    PalMD, I am really looking forward to the results of Pete D’s tests, please do a blog post when the findings come in.

  27. Good Posts Guys,
    I believe we are having a bit of a “harmonic convergence” the whole world is coming out and recognizing that this is real, terrifying and all to true…
    The Scientist that you speak of at Cornell is my Cousins mentor. Isn’t it great.
    I believe that unification, is key, in this mess.

    Yes Mr Common Sense you have put together a great book here, You are unifying a whole globe of sufferers.

    My phone has been ringing off the hook here in Calif. I am fielding so many calls.

    Now its time to get them well.
    Much Love,
    Trisha

  28. Pete D,

    If you are going to look at Fibers, they need to come from a more than one sufferer AND from various locations.

    Thank you and may I ask how will they be examined?

    Very much appreciated,

    Dawn

  29. Mr. Common Sense said:

    I agree Dawn, the kind of fibers I had at the onset of this we’re totally under my skin, not in lesions, just woven all underneath my skin (red and blue), those would be the best because they certainly were not contamination. However, this is a start in the right direction. If our two sides can stop name calling we can work together to end this nightmare, one way or another. I would assume Pete D will provide us with how Gwen obtained her fibers and so on. My opinion is those that come from lesions are not the optimal fibers to look at rather those “under” perfectly healthy skin are best. But my guess is Gwen will provide real Morgellons fibers.

    I looked at my skin for the first time last night with a scope and could find no fibers, I’m almost cured at this point so it’s hard to find anything at all in my skin.

    I am assuming we’ll get back a pretty decent analysis from Pete D since those guys have criticised us on not having any real data. You never know who might unlock this mystery …

  30. Mr. Common Sense said:

    This is from PalMD’s blog regarding Pete’s test:

    # 25 Pete wrote at May 15, 2009 1:14 PM “…I have no idea what Dr. Wymore has done or not done without seeing the data and an explanation of his procedure. … Many published spectra are not included in commercial databases for various reasons. If he published the spectra somewhere, I or our resident IR expert could look at it. Mu is right, the spectra will show what types of bonds are present in the material and NMR would help, too. This does not take long to do!…”

    Pete, if this is a real offer, I accept. Please contact me directly at (email removed). We can confirm the details for the actual meeting, etc.
    Thank you so much!

    Gwen Simmons, RN

    • Maybe you can get this report from Dr. Wymore. He made this statement in Austin in 2008.

  31. Regarding PalMD’s post – “Morgellons—what fibers”, the his own response in the comments section made me realize something.

    21
    There is, however, a decent amount of literature on this. If you pubmed morgellons, most of the hits are case studies and other similar pieces on this very topic, and since it resembles delusional parasitosis in all but name, that literature is frequently referenced.

    Posted by: PalMD | May 15, 2009 10:00 PM

    The sufferers yearn for compassion and acceptance from the medical and science communities and we are mortified of being labeled with the dreaded DOP. There are 3 types of doctors when it comes to their perception of morgellons and the sufferers:
    1) compassionate – don’t know what the patient has but does try to help
    2) unaccepting – patients are written off as imaging thing. The suffering may be real but it’s self inflicted by the patient.
    3) curious – don’t know what this is but is curious enough to do a bit of their own “poking around”.

    To me, PalMD is a combination of 2 and 3 and his most recent posts gear him towards 3 (which is a good thing), although I am not sure just how sincere he is being a 3. So let’s talk about #3 people in general. I think those ppl in credible professions like medical doctors and scientists are right in looking around for more information but where they look is the very problem. Reading PalMD’s blog, he and also some that left comments point to medical repositories and search engies such as pubmed and web of science. I haven’t used these tools in depth but from what I gather based on their responses, the conclusions these ppl are getting from what they find is that morgellons is inconclusive, unproven, and patients are often delusional. To that, I say, “well, duh!” I could’ve told you that. Because science says “false until proven true” and b/c morgellons is not proven, doctors and scientists write it off… So basically ppl are drawing conclusions that morgs isn’t real based on the fact that there really is no conclusion about morgellons. How ironic. Is this what we call circular reference?

    Furthermore, the places they do look which is specifically for morgellons, like the MFR and many other variants, some with more “civilized” info (like here) and others with all sorts of conspiracy theories, are mostly written off by these #3 people b/c the information is so hard to believe and b/c of no shortage of ideas what would typically be deemed silly to the common folk, like aliens and gov’t genocide. So there’s yet another irony. The very places that hold the MOST morgellons related information, not places like pubmed, are written off by doctors and scrientists as quack.

    So what are we to do???

    I’ll tell you what. As crazy as some of the theories are, don’t base conclusions from the lack of conclusions. Many doctor actually accept that at least the suffering part is real. So, give the sufferers some slack. What the sufferers can use most now is some benefit of doubt.

    Sorry this is long already but the other thing I realized today was that perhaps the diagnosis, delusional parasitosis itself needs to be redefined. The morgs sufferers worry so much about being labeld DOP b/c to the sufferer that diagnosis is a false diagnosis and it ends up on their medical records for the entire medical community to know (thanks to HIPAA) that this person is a loon. So anything to avoid being labeled DOP!!!! But do ppl mind if they go to the clinic with fever and coughs and the doctor says they have the flu? (well, not the swine flu but that’s another matter…) No, b/c that diagnosis in itself is accurate. Perhaps if DOP’s definition IS morgellons; so instead of DOP = person imagining crawing bug sensations, DOP = morgellons, then walah, we’d be glad to be called DOP. So is eating oats really the cure to heart disease or not? Are eating too many eggs bad for cholesterol or not? These things are constantly being redefined as research yields to new findings. Fine, label us DOP, but then change its meaning!

  32. I believe that Darkfield Microscopy is going to be the wave of the Future. I am seeing so much disease on a Darkfield Scope.

    In all my years of Science, histology, molecular biology, Anatomy and Physiology, Chemistry I have never been able to see “disease” so well as under darkfield. I am working with one of the premiere Scientists in Darkfield out here in Calif.

    Could anu water be the hope that springs eternal???? I believe it is. We have watched the disenigrarion of fibers internally that look like metal or tin. We have watched the disenigration of parasitic forms and endobioants.

    I have always had a problem as to WHY????? Doctors do not keep a scope in their office. Now I have a problem with why every Doctor doesn’t have a Darkfield in their office.

    There is hope….New Hope we are in contact with over 200 darkfield doctors all over the Country.

    Through Mr Common Senses protocol and the use of anu and New Hope we are seeing some pretty amazing results.

    Probiotics are crucial………….

    Iodine is very crucial also in this……

    It is all about the Terrain. The Terrain tells everything.
    Love and Light,
    Trisha Springstead RN

    These people are not delusional mr PAL MD. They are very ill and many of our sufferers have ended up dying of soft tissue cancers. If they are DOP then I am right up there with them????

  33. I think the soap is working, it’s too early to tell though.

    Use of an electric heater causes the same symptoms of nose itching/irritation as a furnace does.

    After using the soap, I had a nose hair bugging the heck out of me. I rarely do this, but I pulled it out. It was long, the odd thing was, almost half the length from the base up looked white-ish, almost fungus like. I have never seen anything like it before on a hair. I have pulled over watered house-plants before and the nose hair looked like the moldy stalk of a plant, still strong, but weakened. Is the soap working as an anti-fungal? Gentic Modified crops pops into my mind for some reason.

    There are a number of different things working in tandem, or alone, in the Morgallous issue, in my opinion:

    1. Strands.

    2. Fungus.

    3. Bacterias – including the tree one.

    4. Insects – phorids, mites, collabria.

    5. Other organisms such as sponges & algae’s.

    6. Jet spraying – for the purpose of population control of fungus, bacteria & phorids, among other purposes & spray types?

    7. Multiple nano-technology.

    All of the above cause misdiagnosis.

    Dr. Phil had a show recently where a man was mad at his daughter. The man blamed money issues for his anger. I suspect whatever it is, “they” are spraying is the cause of this mans misplaced irrational anger.

    Some of the numbered items above cause a misdiagnosis of bipolar depression and the unfortunate rages resulting in the mass shootings & such. In addition to the unexplained anger, the long time frame & variety of symptom onset of a bipolar diagnosis is key to linking it with the substances in the jet sprays.
    Other misdiagnosis are unexplained cancers, fibermyalga & D.O.P.. I’ll bet there are many more.

    The pharmaceutical industry makes too much money off these symptoms & have too much political & medical influence as a result.

    Too many doctors & researchers (unknowingly?) benefit from the continuation of numbers 1-7 above, or are influenced by the pharmaceutical industry & government to stop it.

    Toluene most likely has nothing to do with the strands of Morgallons. There may not be a relationship between the strands and numbers 2-6. I believe toluene has much to do with numbers 2-6 above. Number 1 & Number 7 are probably related.

    I sometimes think of the Chernobyl power plant explosion in the U.S.S.R. It appears the wind patterns would bring the fallout across the USA. There is no telling what the environmental regulatory controls were at that time in the USSR. There is no telling what kind of substances were used in that nuclear reactor. Did the Soviets have nano-technology, or other things, in use at that time in the reactor? Has a study ever been done to see if there were any harmful consequences here?

  34. Mr. Common Sense said:

    Well, I posted a request on PalMD’s latest blog post regarding Morgellons, it appears it was blocked as others have posted since my post and they are approved. I guess we have our answer then. The posts are merely bait to lure sufferers in to be mocked. It would appear that Dr. Peter A. Lipson (PalMD) isn’t really interested in helping us but merely gets a kick out of mocking those he disagrees with through sites such as

    http://rationalwiki.com/wiki/User:PalMD#Who_I_Am

    It would seem we are not the only ones with whom he has an ax to grind … (From Wikipedia)
    http://en.wikipedia.org/wiki/Conservapedia

    In April 2007, Peter Lipson, a doctor of internal medicine, attempted to edit the article on breast cancer to include evidence against Conservapedia’s statement naming abortion as a major cause of the disease, but found his medical credentials being questioned by Schlafly and other Conservapedia administrators, all of whom ended the debate by deleting Lipson’s edits and blocking Lipson’s account.[15] Several editors, including Lipson, started another website, RationalWiki,[65] which offers criticism of and satirical articles about Conservapedia, its administrators, and the conservative Christian viewpoint which it promotes. According to an article published in the LA Times in 2007, “From there, they (Lipson and his fellow editors) monitor Conservapedia. And—by their own admission—engage in acts of cyber-vandalism.”[15]

    It’s too bad too. I really thought they were interested in helping for a brief moment. Dr. Lipson, I hope someday you find inner peace as you seem to have so much angst to spend so much time on the internet doing what it is you do. It’s funny, I suffer so much pain and am inflicted with such a frightening disease yet my inner peace is so wonderful. My self worth is not derived in being superior, or right, or better than anyone else. I have nothing against you and hope some day you find whatever it is you are looking for.

  35. I would say that enough challenges have been given out to prove or disprove this stuff. They can take it up or not. By not taking it up, they have chosen a side. Most likely, a discredit & disinformation wave will be the reply.

    When, “they” said the Coelacanth fish was – extinct for millions of years – everyone believed them because they were the experts. Even today, after fishermen pulled the living & flopping fish out of the water, Wikipedia has this to say:
    “…The most likely reason for the gap is the taxon having become extinct in shallow waters. Deep-water fossils are only rarely lifted to levels where paleontologists can recover them, making most deep-water taxa disappear from the fossil record. This situation is still under investigation by scientists.”
    http://en.wikipedia.org/wiki/Coelacanth

    This situation is still under investigation by scientists.
    In twenty years will this be the last line in the Morgallons entry?

    On one of the websites you linked, there was a comment:
    “…For one, I doubt the validity of any website that makes mention of chemtrails in seriousness; again, these have no scientific basis…”
    Everyone I have pointed out these jet trails to has said something like, “Yeah, that *is* strange.” It would be hard to count the number of photographs of them online. So it’s not like I’m imagining this or something. I guess they spend too much time indoors in front of a computer & never get out to be aware of their surroundings.

    Then there is this from an official U.S. government website:
    “As a national resource for molecular biology information, NCBI’s mission is to develop new information technologies to aid in the understanding of fundamental molecular and genetic processes that control health and disease…”
    http://www.ncbi.nlm.nih.gov/About/glance/ourmission.html
    “High level contamination by natural and industrial sources of the alkali earth metal, barium (Ba) has been identified in the ecosystems/workplaces that are associated with high incidence clustering of multiple sclerosis (MS) and other neurodegenerative diseases such as the transmissible spongiform encephalopathies (TSEs) and amyotrophic lateral sclerosis (ALS)… The high levels of Ba stemmed from local quarrying for Ba ores and/or use of Ba in paper/foundry/welding/textile/oil and gas well related industries, as well as from the use of Ba as an atmospheric aerosol spray for enhancing/refracting the signalling of radio/radar waves along military jet flight paths, missile test ranges, etc…”
    http://www.ncbi.nlm.nih.gov/pubmed/15082100

    Atmospheric aerosol spray?
    Makes you wonder what the, “etc..” part is.

    From the July 2006 Idaho Observer:
    “…Last May a family in Iowa contacted the office of Sen. Tom Harkin (D-IA) to report the constant criss-crossing of “chemtrails” in the sky above their neighborhood. They received back from the senator’s office a General Accounting Office (GAO) report on “military chaff” and the material safety data sheet for aluminum-coated fiberglass fibers being spread—seven days a week for several hours each day—in the skies above their home….
    …substances were collected and sent to a lab for analysis.
    Among the substances found to be in the samples were several that should simply not be there:
    6 bacteria, including anthrax and pneumonia
    9 chemicals including acetylcholine chloride
    26 heavy metals including arsenic, gold, lead,mercury, silver, uranium and zinc
    4 molds and fungi
    7 viruses
    2 cancers
    2 vaccines
    2 sedatives
    Over the last several months, The IO has received a significant increase in chemtrail-related calls and letters. Most report a dramatic increase in chemtrail “spraying” activity in their areas; some are reporting the development of chronic flu-like symptoms, chronic fatigue and body aches that they have never before experienced…”
    http://www.proliberty.com/observer/20060704.htm

    Some inner peace. Just knowing, “the who & the why” helps me for some reason.

    The solution seems to be ignore the experts, and get on with finding a solution ourselves. What works and what doesn’t?

    Does this work?:
    http://heavenlyhands.net/Morgellons/cure.html

    Are there any others?
    Is it possible to make a barium magnet?
    How many different substances do we need to protect ourselves from?
    Should we just ignore most of it and deal with what we can?

    I often wondered how come, in 1950’s type B science fiction movies, the future people were portrayed as wearing painted on clothing. It seemed such a silly idea. Now, however; I think I get it.

    One thing is for sure, “they” should no longer be supported by us. If enough people agree, the system collapses and the cause of this no longer continues. There is only the residue left to deal with.

  36. I have tried to contact heavenly hands in regard to my products. There are many methyls and hexyls in their skin care. I have tried everything for my patients. Their Skin care is a bust.
    Much Love,
    Trisha

  37. Just letting you know that science blogs spam filter gets freaked out about links sometimes. If you make a post with external links in it, and it doesn’t show up, let the blogger know so that he can free it from the spam filter.

    Or it’s some big giant conspiracy to mock people.

    One or the other :p

  38. Mr. Common Sense said:

    John, my PalMD days are over, it’s back to business as usual around here, I have too many things to do than to waste my time over there, I think my last comment above pretty much sums it up. I would encourage others to stop wasting thier time over there as well. Chalk it up to a lesson learned … Arguing over this is rediculous. I never said it was a conspiracy, some people just enjoy arguing and I’d rather spend my time doing other things. What we need is research.

  39. Oy. Mr. CS, I posted several comments reiterating that I do not censor comments, and that a simple email request will get comments out of the spam filter. I have no interest in silencing anyone. This has been the first time i’ve seen anything near a productive discussion.

  40. For me, I have to go read his latest post… grasshopper shaped bodies on insects.. we’re on to something now.

    I’m telling you, I saw a miniature grasshopper shaped insect clinging to the shaft of a hair under a low power microscope after being asked to do so by someone else. I’ve had a bit of science training, especially in biology & chemistry, so I kind of knew what I was doing.
    I’m a bit tired of repeating myself.

  41. Agree with forgetting PalMD, who is obviously a narcissist who is spewing party-line rhetoric and ignoring the many obvious conflicts-of-interest in the IDSA’s position (or for that matter, mainstream medicine’s). Either more docs will have to get infected (one can only hope–give it time) or this generation of docs will have to die off before recognizing chronic lyme or morgellons. Narcissists are closed-minded to any position that would threaten their own self-aggrandizement.

  42. I would be glad to take any samples that people may have. I am at:
    3421 Ocean Avenue
    Oxnard, California 93035
    Trisha Springstead
    I have some great contacts here in California.

  43. It is August 3, 2011. I recently found out that I have Morgellon’s. STILL no CDC report!! Surprise, surprise. The first sites I found were the chemtrail, alien, and government conspiracy ones. Then I found this site, and thought it would be a big help because it seemed so sensible, and not way “out there”. However, the post above this was dated May, 20, 2009. That’s over 2 YEARS and still there is nothing new so far as cause, cure, etc. Maybe there IS a government coverup…who knows???

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