Archive for April, 2010

Dr. Staninger’s Toxicology interview with Dr Susan E. Kolb

You might not agree with Dr. Staninger on all points, but I listened to this interview and learned a lot about toxicology and the body. Like I’ve said before, I don’t have a horse in this race. I filter everything thing I hear or read and so should you, however, that being said I have learned a lot from Dr. Staninger.

Listen ==> HERE

If that doesn’t work you there are more links here …

http://blog.healinggrapevine.com/morgellons/listen-to-dr-staninger-interview-with-dr-susan-e-kolb/

Congressman Waxman’s sneaky anti-vitamin bill

Congressman Waxman sneaks anti-vitamin amendment into Wall Street reform bill

Congressman-Waxman (NaturalNews) Of all the sneaky tactics practiced in Washington D.C., this recent action by Congressman Henry Waxman (D-CA) is one of the most insidious: While no one was looking, he injected amendment language into the Wall Street Reform and Consumer Protection Act of 2009 (H.R. 4173) that would expand the powers of the FTC (not the FDA, but the FTC) to terrorize nutritional supplement companies by greatly expanding the power of the FTC to make its own laws that target dietary supplement companies.

This is a little-known secret about the FTC and the nutritional supplements business: The FTC routinely targets nutritional supplement companies that are merely telling the truth about their products. Some companies are threatened by merely linking to published scientific studies about their products.

http://www.naturalnews.com/028687_Henry_Waxman_health_freedom.html

Eventually Big Pharma is going to win, American Politicians are bought and paid for, I’m disgusted by the whole lot of them. Honor, integrity, love of country are dead in this country. I’m sickened by the entire system.

Infectious Diseases Society of America on Morgellons

Delusional Parasitosis

Boggild AK, Nicks BA, Yen L, et al. Delusional parasitosis: six-year experience with 23 consecutive cases at an academic medical center. Int J Infect Dis 2010; 14:e317–e321.

Boggild and colleagues analyzed 23 consecutive patients with a diagnosis of primary delusional parasitosis who had presented to the emergency department or the infectious diseases clinic at the University of Washington. Their median age was 45 years (range, 31–77 years); 15 were female. Ten patients reported being infested with worms, 8 with an unknown type of parasite or insect, and 1 with lice, and 2 patients reported skin inoculation. Reported symptoms included visualization and/or sensation of parasite movement in 39% and pruritus in 44%; 8 patients had skin lesions, which may have resulted from excoriation and/or attempts to extract or kill parasites, on examination. Eight patients brought in small containers, plastic bags, or tissue paper containing what they believed to be parasites. Only 4 patients accepted psychiatric referral.

Delusional parasitosis may be primary, as in the cases discussed here, or secondary to psychiatric disease, medical illness, intoxication, or substance abuse [1, 2]. The primary form is a “delusional disorder of the somatic type in which the person has a fixed belief” [2, p 784] that exists in the absence of other thought disorders. Thus, patients with delusional parasitosis may have normal mental function in other spheres of their lives and may remain otherwise fully functional. Although the delusion most often involves skin, some patients report the movement of worms internally or their presence in feces. Patients often present small containers containing various material, which they believe represents the parasite that has emerged from their skin or from a body orifice, a phenomenon that has been called the “matchbox sign” or “Ziploc bag sign.” Folie-a-dieux, in which a spouse, other family member, or significant other often shares the delusion, is common and may extend to additional acquaintances (folie-a-trois) or even to an entire family (folie-a-familie).

These patients are often referred to infectious diseases specialists, and treatment is difficult. They have often already seen multiple physicians and have been dissatisfied. As in the series from the University of Washington, patients often resist referral to psychiatrist, and the suggestion of referral may elicit anger. It is reported, however, that some patients respond well to administration of atypical antipsychotic agents.

Some interested parties have given the eponym Morgellons disease to delusional parasitosis, have created a Web site (http://www.morgellons.org/), and have developed an organization that successfully convinced the US Centers for Disease Control and Prevention to formally study “Unexplained Dermopathy (also called ‘Morgellons’)” [3]. Enrollment in the study has been completed, and the results to date were reviewed by an external panel on 24 September 2009, with a summary of their review to be posted in November 2009. As of 13 April 2010, however, the results do not appear to have been released.

References

1. Freudenmann RW, Lepping P. Delusional infestation. Clin Microbiol Rev 2009; 22:690–732.
2. Frean J, de Jong G, Albrecht R. Imaginary bugs,real distress: delusional parasitosis. S Afr Med J 2008; 98:784–786.
3. Unexplained dermopathy (also called “morgellons”). http://www.cdc.gov/unexplained dermopathy/investigation.html.
April 2010.
DOI: 10.1086/653461


This article above was just in this months edition …

My favorite quote …

Patients often present small containers containing various material, which they believe represents the parasite that has emerged from their skin or from a body orifice, a phenomenon that has been called the “matchbox sign” or “Ziploc bag sign.” Folie-a-dieux, in which a spouse, other family member, or significant other often shares the delusion, is common and may extend to additional acquaintances (folie-a-trois) or even to an entire family (folie-a-familie).

This is a real shoddy article I must say. I think Joe’s articles on DOP (available on this blog) show real investigative instincts and a desire to get to the truth no matter what the outcome. This article starts with the conclusion and reveals that no serious investigation was undertaken. This frankly looks embarrassing on the medical communities part.

Finally, the article states that “Some interested parties have given the eponym Morgellons disease to delusional parasitosis”, talk about begging the question. The authors cannot even fathom that Morgellons could be anything else but DOP. After all, we did not start calling DOP Morgellons, rather doctors started referring to us as DOP without so much as an examination. Apparently, DOP is contagious as they go on to explain that it can spread to ones family members and friends. I’m really surprised they didn’t just go ahead throw in the “old internet disease” routine while they were in there.

A Sobering Reminder

Health Guru Says He Was Almost Killed by His Own Diet Product

Gary_Null

That’s not exactly a ringing endorsement.

Nutrition guru Gary Null says he was almost killed by eating a dietary supplement — his own.

In papers filed in Manhattan Supreme Court, the controversial alternative-medicine advocate says he suffered "mentally and physically" after eating his Gary Null’s Ultimate Power Meal.

Over the month Null, 65, ate the powdered product, he suffered "excruciating fatigue along with bodily pain," and "began to suffer from extreme cracks and bleeding from within his feet," the suit says.

"Null had to be in bed with his feet elevated because it was so painful he did not have the strength to walk" — but he kept eating Gary Null’s Ultimate Power Meal, "thinking that it would help him and relieve his condition."

Instead, it made it worse, according to the suit, which blames a contractor that mixed the powder.

The health nut went to see his doctor, and tests showed he had elevated levels of Vitamin D in his system. He later discovered that the Ultimate Power Meal had 1,000 times the amount of Vitamin D than the label claimed.

That meant that instead of ingesting 2,000 IU of Vitamin D daily, he was ingesting 2 million IU, the suit says. Most doctors recommend 1,000 IU a day.

Null said he was later told that if he hadn’t visited his doctor when he did, "he could have died within a short period of time."

When Null discovered what the problem was, he "sequestered himself and fasted, only consuming massive amounts of water, as he was told that there was no medical treatment to lower the amount of Vitamin D in his system," the suit says.

"It took three months to get his blood seemingly back to where he was able to function. Even now, Null’s condition is questionable, as he continues to occasionally urinate blood," the suit says.

Null — who markets fitness DVDs, as well as hair-care, anti-aging, anti-stress, air-purification, weight-loss and pet-care goods on his Web site — soon discovered he wasn’t the only one who couldn’t handle his product.

While he was recuperating, "six consumers were hospitalized with severe kidney damage, and Null, in the midst of all this, while he was suffering in bed, had dozens of his customers calling him, along with condemning and threatening him," the suit says.

The suit — seeking $10 million — says New Jersey company Triarco was responsible for mixing the Vitamin D for the product, which has since been recalled. It charges Triarco failed to do proper tests before sending the ingredient on.

Triarco didn’t return a call for comment.

The Morgellons Forum Phenomenon

MrC

I’m going to make some more enemies today but if this post helps only a few then to me it’s all worth it. By no means do I mean to belittle or mock anyone. I am commenting more on the “forum phenomenon” itself and not the actual individual people involved, many whom I respect.

I’ve been watching a thread over on LymeBusters for quite some time now, it started out with such potential but has denigrated into a smattering of techno mumbo-jumbo simply copied out of all kinds of scientific/medical articles that serve to leave the reader bewildered and full of all kinds of contradictory and sometimes just bad information.

The title of the thread is “Pathogenic Candida Albicans- CAUSE” and it can be found HERE. It’s now over 10 pages long. The topic is great, Candida, it’s very common in people and can cause most of if not all of our symptoms, including skin crawling, so the original posting I thought was a great start.

Before I begin talking about this post let’s review something I posted quite a while ago …


The “Skin Crawling Family Tree”

familytree

All of the groups above suffer from Skin Crawling Sensations and the feeling of Bugs Crawling Under the Skin. What if there was a common link between all of these groups? That is what this post is all about, I believe there is a common link, and that link is Acetaldehyde.

Meth Users

If you have been following my blog then you know how I have connected Morgellons to Toluene. If you haven’t read the previous posts click on the All Posts page and catch up, it should prove well worth your effort. In my Mr. Morgellons meet Mr. Meth, Your Distant Cousin I documented that Toluene is used in Meth production and they experience severe bug crawling sensations known as “Meth Bugs” or “Crank Bugs”. We know that Toluene breaks down into Acetaldehyde.

Cocaine Users

It turns out Cocaine users can also experience bug crawling sensations. From the article Cocaine and the Destruction of the Rainforests there is a quote

Annually, according to Peruvian forest engineer Marc J. Dourojeanni, coca growers dump 15 million gallons of kerosene, 8 million gallons of sulphuric acid, 1.6 million gallons of acetone, 1.6 million gallons of the solvent toluene, 16,000 tons of lime and 3,200 tons of carbide into the valley’s watershed.

For more on Cocaine and how it’s made see this DOCUMENT. We know that Toluene breaks down into Acetaldehyde.

Candida Sufferers

Acetaldehyde is the main waste product when Candida die-off occurs. For an interesting article see The Candida/Aldehyde detox pathway and the Molybdenum Connection for more information. The damage that Acetaldehyde causes to the body is tremendous and behind many other common diseases. Also, another good article is Candida Albicans and Acetaldehyde Toxin from which you will find this quote.

These effects of acetylaldehyde are multiplied many times over when candida die off occurs

Skin crawling sensations are common compliant for Candida sufferers. Also, this amazing quote:

The primary detoxification mechanism for scavenging unmetabolized acetaldehyde is sulfur-containing antioxidants [see Figure A]. The two most important are cysteine, a conditionally essential amino acid, and glutathione, a cysteine-containing tripeptide (a three-amino-acid polymer) [see Figure B]. Cysteine and glutathione are active against acetaldehyde (and formaldehyde) because they contain a reduced (unoxidized) form of sulfur called a sulfhydryl group, which contains a sulfur atom bonded to a hydrogen atom (abreviated SH).

Sulfhydryl groups interact with aldehydes to render tham incapable of forming cross links. This “mops up” or scavenges any stray acetaldehyde that is not properly metabolized into acetate (acetic acid) [see Figure A]. Although this is a powerful aldehyde detoxification mechanism, it is easily overwhelmed by the relatively large amounts of alcohol that are typically consumed with alcoholic beverages as compared to the amounts of alcohol and acetaldehyde that are produced through normal metabolism. Fortunately, sulfhydryl antioxidants can easily be fortified through dietary supplementation.

In one experiment with rodents [Sprince et al., 1974], a LD-90 dose of acetaldehyde (the dose that would normally kill 90% of the animals) was completely blocked by pretreatment of the animals with cysteine and vitamins B-1 and C. In other words, none of the cysteine-treated animals succumbed to the lethal dose of acetaldehyde! N-Acetylcysteine (NAC) protected almost as well as cysteine.

In another rodent experiment [Busnel & Lehman, 1980], alcohol’s ability to inhibit swimming after the alcohol had been completely metabolized was blocked by vitamin C. What this and the previous study suggests is that the pharmacologic and toxic effect of alcohol are different. The pharmacological effect (i.e., intoxication or drunkenness) is not inhibited by vitamin C or cysteine, but the toxic effect (e.g., the hangover, nervous irritability, swimming difficulty) is inhibited. This suggests that, with alcohol, you can “have your cake and eat it too.”

If that doesn’t sound exactly what we are going through with Morgellons I don’t know what does, notice how sulfur works so well.

Alcoholics going through DT’s

If you do some searching you will see that some alcoholics go through DTs so bad they experience the sensation of bugs crawling under their skin. It is my suggestion that this occurs when the massive Candida colonies they are maintaining go through die off 3 to 5 days after the alcohol flow is stopped. See Living with Alcohol for it’s link to Acetaldehyde.

Morgellons Sufferers

Like I have stated in previous blog posts many Morgellons patients have found high Toluene levels in their blood work and its metabolites such as Hippuric acid are found as well. Toluene will also biodegrade down the Benzoate path thus our glass crystals also (covered in another post). Much more can be said here. Of course, as this breaks down into the Acetaldehyde path and we suffer skin crawling just as the Candida sufferer does, it’s not the fungus in our case, it’s the Acetaldehyde being biodegraded from the Toluene in our bodies. I believe that Acetaldehyde causes the skin crawling sensation and not the actual fungus.

Formaldehyde (Tiny insects crawling over the eyes and nose?)

Let’s talk about a close cousin of Acetaldehyde and that is Formaldehyde. There is an amazing research paper out there on this, take a look at this quote:

Skin reactions: …chemical can be both irritating and allergy-causing…(EPA).  A slight sensation of tiny insects crawling over the eyes, nose and pharynx  (formication) is felt at 2-3 ppm.  (Zurlo N, via OSH, NZ.)  Contact with the vapour or solution causes skin to become white, rough, hard and anaesthetic due to superficial coagulation necrosis. With long exposure, dermatitis and hypersensitivity frequently result.  Prolonged exposure may also cause cracking of skin and ulceration, especially around the fingernails.

I wont bother to post all the links but I could find a thousand posts from Morgellons sufferers stating that they are sure they have bugs or worms crawling all over and in their eyes and around there nose, it’s a very, very common symptom. I too have felt that sensation on my eyes, like a bunch of mites crawling across the surface. Depending on what is laying around in our body I believe that Formaldehyde is often times created internally as well as Acetaldehyde.


Okay, now back to the LymeBuster’s thread. It was my original research (re-posted above) that keyed me into NAC (N-acetyl cysteine) because of it’s ability to bind to and eliminate acetaldehyde. Of course, NAC has so many other wonderful benefits but we’re not going there on this post.

PLEASE CLICK ON THIS MAP, SCROLL TO THE BOTTOM AND SEE WHAT TOLUENE EVENTUALLY BREAKS DOWN INTO, THIS IS VERY IMPORTANT IF YOU WANT TO LEARN ==> HERE 

Yes !!  Toluene breaks down into Acetaldehyde, so, indeed, the Skin Crawling Family Tree still today makes a lot of sense doesn’t it?

Now, what kills me is to see some people on the LymeBusters thread posting that NAC will encourage Candida growth, the next thing you see is folks saying, oh, I’ll stop taking it. Well, to each his own but NAC has been key to my recovery. NAC is not a “real” contributor to Candida.

So what’s my point? The point is forums are not a great way to find real helpful information regarding this disease. Posts often contain a ton of information, much of it unrelated, simply copied into a thread as if it has some relevance forming a giant maze of barely related information most of which the reader cannot even understand. If you think you have a Candida problem why not do something about it? Sitting there posting on threads all day is not going to make you healthy. Indeed, I say it will actually do the contrary. It’s an addictive problem and it doesn’t just go on at LymeBusters, it’s happening everywhere that there are Morgellons forums. This addiction is actually ruining the lives of some sufferers, I know this to be the case.

Get off the damn forums and go for a bike ride, think about what your experiencing and throw out the unreliable feelings, rationalize what might be happening to you discarding the spectacular theories. Yes, it feels like bugs are crawling all over you doesn’t it? But can you find any? No, you really can’t. Well, then maybe you need to take a step back and think perhaps it’s not bugs? What else can it be? What else can cause these kinds of symptoms? Is there any common thread between others that suffer these symptoms? And if is there any common supplement that is safe that targets these symptoms I can then test and see if it relieves or improves my symptoms.

That is how you find your way out of this mess, not riding the forum waves to freedom. I’m so glad I swore off forums, I catch myself wanting to jump in and just shout at people sometimes …

“Do you want out of this mess or do you want to keep Googling more meaningless scientific articles?”

If you’re addicted to forums, stop surfing them and I mean today. They might seem like a good means of support but the stuff you read on most of them is not worth the cost to your psyche. Ask yourself honestly, do you feel better, more positive, and hopeful after surfing Morgellons forums?

There is a reason I called my blog Mundane. I know I’m going to take heat for this post and probably some of it is deserved. Forums aren’t all bad and I am definitely not saying this blog is the ultimate source of truth either, hardly so. However, I had to stop and unlearn all the garbage I had absorbed through various forums I was on before I could even begin to find my way out of this mess and attack Morgellons methodically. Every moment you are on a forum, or even this blog, is a moment you could be outside enjoying the day. In the end, you have to choose to live your life or completely wrap up your identify in being a Morgellons sufferer. Don’t be your disease, don’t let it grab a hold of you such that you surf Morgellons forums all day long.

Finally, and most importantly, don’t talk to your loved ones about Morgellons unless they are into it, it’s just a bad idea and no good will come of it. The less you think about Morgellons, especially bizarre stuff, the healthier you are going to become. I read an article on Natural News the other day where they tested a placebo and the placebo actually worked better than the current drug of choice, they concluded that hope was a better healer, think about it.

Stained Glass Masquerade

Nanotransformation Passes The Torch to Dr Staninger

Because there have been so many comments on this blog about the NanoTransformation site being shut down I thought I would reprint this blog post from the Healing Grapevine.

We have had emails asking us if we have any news on the whereabouts and details on why nanotransformation.com is no longer on the internet airways…

We wanted to be sure and report the news correctly and not fuel any rumored ideas or misinformation. There are many reasons that a website will come down and in this case it has nothing to do with the apparent threat of a lawsuit against them last year or any other government agency, big brother meanie shutting them down. This is simply a personal decision by the folks who brought us Nanotrans.

We contacted one of the moderators whose pen name is Sungazer for an ‘official comment’…

“Due to an overwhelming number of requests for assistance throughout the world including cases of advanced Morgellons and morgellons-like symptoms that surpass our experience, we have elected to close the site and refer all cases to HealingGrapevine.com until further notice. This website is developed under the professional and scientific guidance of Dr. Hildegarde Staninger, whose level of knowledge and experience surpasses our own.

Thank You”

- R aka Sungazer

It is an interesting adventure within what we call life, and no matter what happens, we wish everyone to be in harmony and health.

We say thanks to the folks at nanotrans for all their efforts and may the Healing Sunbeam of Mother Nature kiss them on the cheek!

http://blog.healinggrapevine.com/morgellons/nanotransformation-passes-the-torch-to-dr-staninger/

PS: I deleted all comments about the NanoTransformation site being shut down from my “PMP II” post as I want that post to be about the protocol and not be clouded about other issues.

Simply Raw

Over the last 20 years the world population has grown by 30%. During that same time the population of diabetics in the world has grown by 766%!

See http://www.rawfor30days.com/RawFor30/Diabetes_Action_Day2.html for more information. Be sure and see the disclaimer at the bottom of the link above.

Joni Mitchell Talks about Her Battle with Morgellons Disease

On April 22, The LA Times asked Joni this question:

You’ve come out in the media as a sufferer of a controversial condition known as Morgellons. How is your health currently?

Joni Replies

I have this weird, incurable disease that seems like it’s from outer space, but my health’s the best it’s been in a while, Two nights ago, I went out for the first time since Dec. 23: I don’t look so bad under incandescent light, but I look scary under daylight. Garbo and Dietrich hid away just because people became so upset watching them age, but this is worse. Fibers in a variety of colors protrude out of my skin like mushrooms after a rainstorm: they cannot be forensically identified as animal, vegetable or mineral. Morgellons is a slow, unpredictable killer — a terrorist disease: it will blow up one of your organs, leaving you in bed for a year. But I have a tremendous will to live: I’ve been through another pandemic — I’m a polio survivor, so I know how conservative the medical body can be. In America, the Morgellons is always diagnosed as "delusion of parasites," and they send you to a psychiatrist. I’m actually trying to get out of the music business to battle for Morgellons sufferers to receive the credibility that’s owed to them.

The Full Interview is HERE

I wish I could spend 30 minutes talking to Joni on the phone, my guess is what we’re are accomplishing here could be of great benefit to Joni. I hope she does join the battle for sufferers, there are so many that need help. Special thanks to the little bird that sent me this story.

Conference Call on Great Plains Labs

So okay you asked for it !!! We will try our best !!
Please join us! The Morgellons Focus on Health first ever Conference call on GPL Testing.
Conference Call on Great Plains Labs
Dear Morgellons Focus On Health Community

Pamela

I am HOSTESS so you won’t have to listen to me talk much.
Conference Call on Great Plains Labs

You asked me to do this so now you’re getting spoiled!  We are having a question and answer Teleconference call scheduled for all of you to ask questions and teach about Great Plains Labs.

  • Why have testing?
  • What will testing show?
  • How does this testing differ from others?

You get to hear someone who is and expert !

Guest speaker Nancy Guberti C.H.N

nancy Certified Holistic Nutritionist and Health Coach

Nancy is the driving force behind all of you having testing done to see what is underneath this syndrome called Morgellons. She is skilled in reading the Great Plains Testing and in designing a personalized programs based on the findings. She has inspired me to know ‘We can be our own health advocates AND NEVER GIVE UP !’

Phone Conference Call to happen: MAY 5, 2010

  4:00   PM Pacific Standard Time
  5:00   PM  Mountain Time
  6:00   PM Central Standard Time
  7:00   PM Eastern Standard Time

 

MARK YOUR CALENDAR WEDNESDAY MAY 5th
It’s easy to ask your questions,or even to listen and enjoy.

DIAL THE NUMBER   1-712- 432- 3100

       The  operator will ask for the code : 506331

Its so easy… but email with questions….

You are all invited. I know you will regret not asking that question you have been wondering about if you miss it. Bless you all, and I hope to hear some of your wonderful voices on the call.

Pamela M. Crane 
www.Morgellonsfocus.com
pamela@morgellonsfocus.com

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