Archive for the ‘CDC’ Category

The Discarded

This ain’t over …

An Interesting Disclaimer at the End of the Morgellons CDC Study

DISCLAIMER: The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention, Kaiser Permanente or the Armed Forces Institute of Pathology.

See  http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0029908

So, in the end, it would appear that nobody is responsible for this study, or on the hook for it’s claims and or results.  I’ll let you draw your own conclusions.

So Stop Calling It Morgellons

A blog post well worth reading …

http://blog.healinggrapevine.com/morgellons/so-stop-calling-it-morgellons/

Sorry for the barrage of posts, but with the recent news story there’s a lot happening

Fox News Report on Morgellons Study

This video is unfortunately what the media is reading into the study.  At then end of the video, when this supposed medical expert points to his head, I just had to chuckle. Interestingly, even he himself stated that he has had patients with this (and he is in NY). Basically, people with this condition are everywhere and yet the conclusion is that it’s all in everyone’s mind. What has to be true for this assumption to be correct? Which is more plausible, that there is a real, physical, causal agent behind Morgellons or that a mass mental delusion is spreading throughout the land?

Report HERE ==> CLICK

CDC Morgellons Study Finally Released

First, please, for those of you that are down and really suffering don’t be discourage. I will be posting a video on this site with me in the video speaking directly to you tell you how to cope with this disease and what we are going to do. I know there are people on the edge, hang on, you’re going to make it.

PLEASE DON’T BE OVERLY NEGATIVE, THIS IS NOT ALL BAD NEWS:

But the study shouldn’t be interpreted to conclude that the problem is all in sufferers’ heads, Eberhard stressed. Instead, it should be a baseline for future research and encouragement for patients and their doctors to work together, harder, to find a cause.

“These people are definitely suffering from something,” Eberhard said. “It has impacted their lives greatly.”

Here is a link on the CDC site proving it’s really released: CDC Website Announcing Report

The full report: Full CDC Report (Scroll Down, it’s Bigger than it First Appears)

Now, for a link to a ton of news stories on the subject: http://tinyurl.com/6wkzzmx

See this Report : HERE

Mr. C

Tracking Image

CDC – Where does the money go?

While you’re watching this video think about the tawdry 350k they spent on our “supposed” study as they workout in their state-of-the-art excercise center complete with 30,000 sauna’s, quite rooms, and zero gravity chairs fitted with mood enhancing lights for their employees. I figure they must need all these things because, as we all know, they are working feverishly night and day to discover the cause of Morgellons Disease.

Please, Everyone watch this video. Click on the image.

Morgellons – A Call To Action

You can click on the lower right hand corner
of the video and watch this full screen as it’s HD.

Tick-borne parasite infecting blood supply: CDC

CHICAGO (Reuters) – A tick-borne infection known as Babesiosis, which can cause severe disease and even death, is becoming a growing threat to the U.S. blood supply, government researchers said on Monday.

There are currently no diagnostic tests approved by the U.S. Food and Drug Administration that can detect the infection before people donate blood.

A 31-year study by the Centers for Disease Control and Prevention now suggests the parasitic infection may be increasing.

Babesia infections are marked by anemia, fever, chills and fatigue, but they can also cause organ failure and death.

The still rare disease is known to occur in seven U.S. states in the Northeast and Upper Midwest in the spring and summer.

But a study led by Dr. Barbara Herwaldt of the CDC, published in the Annals of Internal Medicine, found cases had occurred year-round and in states where Babesia parasites are not found — including as far away as Texas and Florida.

States in which the parasite occurs naturally are Massachusetts, New York, Connecticut, Minnesota, Rhode Island, New Jersey and Wisconsin.

Of the 162 cases of Babesia infection caused by blood transfusions between 1979 and 2009, nearly 80 percent occurred between 2000 and 2009.

“Babesia microti has become the most frequently reported transfusion-transmitted parasite in the United States,” CDC researchers wrote, far outpacing malaria infections, which accounted for 49 cases of transfusion-associated disease during the same period, including just five cases during 2000-2009.

Premature infants appear to be especially vulnerable.

A separate study published on Monday in the journal Pediatrics by a team at the University of Nebraska looked at seven cases of transfusion-associated Babesiosis in premature infants.

They found blood transfusions from two infected units of blood caused all seven of the cases of Babesiosis.

Symptoms of the infections varied widely, but babies with the lowest weights at birth were at greatest risk of serious infection.

The authors warned doctors in areas in which Babesiosis occurs to be watchful for cases in premature infants exposed to blood transfusions.

The CDC researchers called for better ways to prevent and detect cases of transfusion-associated Babesiosis.

“Our findings underscore the year-round vulnerability of the U.S. blood supply — especially, but not only — in and near Babesiosis-endemic areas.

“They also highlight the importance of multi-agency collaborative efforts to detect, investigate, and document transfusion cases; to assess the risks for transfusion transmission; and, thereby, to inform the scope of prevention measures.”

To deter transfusion-linked Babesiosis, the CDC in January said public health departments should report all cases of the infections to the CDC.

Click here for the original story …

CDC Releases Findings – Hires Axl Rose to Deliver Report

Okay, I have kind of a warped sense of humor, so forgive me, by the way, stop it after the 1st song, while I did set the start time of this video you cannot set the stop times.

Skin infestation a delusion, study says

I want all readers of this blog to take a deep breath.This isn’t the CDC study. This is posted on CNN and HEALTH.COM

Other links to this

Published today May 16, 2011 on WebMD News
http://tinyurl.com/3njwalq

Archives of Dermatology
http://tinyurl.com/3zs6myo

Again, the CDC study has not yet been published.


study

(Health.com) — For years, dermatologists have been aware of — and baffled by — people who feel a constant creepy-crawly sensation beneath their skin, which they believe is due to bugs, worms, or eggs below the surface.

Now, in the largest study to date to examine skin samples from patients with these symptoms, doctors have firm proof that these infestations — known as delusional parasitosis or delusional infestation — are not real.

The researchers acknowledge, however, that the findings may not be enough convince many of these patients. Patients often feel dismissed when doctors reassure them that the infestation is all in their head, and many continue to believe they are teeming with bugs even when skin biopsies come back negative.

"It’s almost impossible to get them to shake this belief, no matter how much evidence you produce to the contrary," says Mark D. P. Davis, M.D., a professor of dermatology at the Mayo Clinic, in Rochester, Minnesota.

Health.com: 20 medical mysteries and miracles

Antipsychotic drugs are the standard treatment for delusional infestation. But, Davis says, "A lot of patients with this disorder don’t want to take these drugs because they don’t feel they have a delusional disorder."

Some patients who experience this skin-crawling sensation believe it is caused by textile-like fibers produced by an unknown organism.

Along with a group of sympathetic doctors and advocates, these patients have pushed for the condition to be officially recognized as Morgellons disease, and have lobbied — successfully — for the Centers for Disease Control and Prevention to investigate it.

However, most doctors maintain that the condition is psychological rather than physical.

In a new study, published this week in the Archives of Dermatology, Davis and his colleagues sought to confirm this view by presenting the results of skin biopsies taken from patients in whom the delusional infestation was diagnosed at the Mayo Clinic between 2001 and 2007.

The researchers performed 80 biopsies. As expected, none showed evidence of skin infestation, although 49 patients did have some skin inflammation, known as dermatitis.

This inflammation might be due to some underlying cause, such as allergies, or it could have been caused by the patient’s efforts to remove the bugs or objects by digging them out or even trying to burn them, Davis says.

Health.com: What’s that rash?

In addition, 80 of the study participants — including some who also had biopsies taken — supplied their own skin samples to the doctors.

Ten of these specimens contained insects, such as a mite or tick, but only one such bug was actually capable of causing an infestation; it was a pubic louse, but the patient’s biopsy did not show any signs that his or her skin was infested with the lice.

The CDC recently completed its own study of the condition, which the agency refers to as unexplained dermopathy, but the results have not yet been published.

Davis’ study "leaves little room for speculation," says Roland Freudenmann, M.D., an associate professor of psychiatry at the University of Ulm, in Germany. Freudenmann is an authority on delusional infestation but didn’t take part in the current study.

"It may irritate those who cannot accept the diagnosis of delusional infestation," he says. "But the study shows that delusional infestation exists and that it is the patients who are wrong."

Health.com: Healthy weight or healthy mind? Psych drugs can pile on pounds

Freudenmann adds that he hopes the new findings, as well as the forthcoming CDC report, "bring an end to the ‘Morgellons story.’" Jennifer Murase, M.D., a dermatologist and associate clinical professor at the University of California San Francisco (UCSF), says she typically sees a handful of patients with delusional infestation each year.

It’s important to take the patient’s complaints seriously, says Murase, who was not involved in the new research. These people often have an underlying skin condition such as eczema or psoriasis, which could be affecting their nerves in abnormal ways and contributing to the sensation of infestation, she explains.

Health.com: Can a healthy diet help psoriasis?

Murase and her colleagues often conduct biopsies in these patients, mostly to reassure the patients rather than to confirm the diagnosis of delusional infestation.

The patient chooses the spot where the biopsy is to be taken, and must agree that only one biopsy will be done. The patient also has to agree that if the microscopic examination doesn’t find evidence of infestation, "they will be more open-minded and think of other causes for the condition," she says.

John Koo, M.D., a dermatologist who works with Murase at UCSF, estimates that roughly one-third of these patients can be easily convinced that the problem is not a real infestation; one-third require more convincing; and another one-third can’t be swayed from their conviction.

"If you kind of hang in there and stay with them, they can get better," Murase says. "They can actually do quite well."

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