What is the current status of the study?
Study recruitment, examination of participants, and collection of samples has been completed. We are currently analyzing the data collected.
How will CDC communicate information about this condition and the findings from the study?
On September 24, 2009, CDC convened an external review panel made up of experts from the fields of dermatology, infectious diseases, public health, and mental health which examined the study activities to date and provided advice on future activities. The panel provided recommendations and guidance to CDC about analyses they think should be conducted on the data. A summary of the findings of the peer review panel will be presented to CDC’s CCID Board of Scientific Counselors in November 2009 and will be made available on this website.
In addition, results of this study will most likely be published in a peer-reviewed scientific journal and disseminated through other channels, to CDC’s public health partners, such as State and local health departments and medical societies, and through this website.
In December 2008, CDC mailed letters to state medical associations, in case they and their members received inquiries about this condition, in order to provide an update about CDC’s activities. Letter from CDC to medical association [PDF, 45 KB] We will provide an update to these organizations as well, when the study results are available.
First, special thanks to Sidney for giving me a heads up on this information. And for those of you who find this post distressing, there is encouragement at the end of this post for you.
Now my analysis, which is not recommended for those who are depressed right now, but some things must be said here. First, how many years did it take to collect samples? Also, and most telling is that there are no toxicologists or parasitologists on their review panel, however there are mental health and public health folks on the team. That alone should let you know where this is heading. Tell me exactly what a public health person is or what they really do? There are other interesting usages of language in the CDC statement above which I will not dive into, but I’ve always been very good at reading between the lines and I learn more from what is left unsaid rather than what is actually said. What is not said is far more revealing.
I’m not the least bit surprised, nor angry, I knew where this was headed when they doled out that massive 360K (or whatever the tawdry amount was) to investigate Morgellons. I figure if they’re willing to spend the money it would take to buy a home in California on the study they had to be serious about Morgellons.
Hope for the best, but expect the worst, that way of thinking has always been pretty useful to me. The good news is there have been a few comments of late on various threads on this blog stating things like “I’m 50% better by adapting your protocol” and so forth, many are making very positive progress. On the flip side, I have read some very depressing news from some that have gone the pharmaceutical route on LymeBusters, and that saddens me deeply. But you have to make up your own mind on what is best for you.
For now, it appears that in November of 2009 (expect another delay) a summary of their findings will be posted on the CDC website. As sort of a fun exercise I’m thinking of writing my own summary of their findings and posting it in a few weeks just to see how close I come, my guess, it would be very close indeed.
A Word of Encouragement
For those of you in that dark place right now and full of fear, I know you, many of us do, I was you. I know what it’s like to check the forums everyday and hoping beyond hope for a breaking post about a cure. It is you I want to speak to you frankly for a moment. While I don’t know most of you personally I do love you as a fellow sufferers. I was you for a what seemed like a very long time, I saw no way out, I couldn’t do it on my own (or so I mistakenly thought). It eats at you, you are driven by a force you cannot control and you keep looking for the cavalry to come over the hill to save you. For the moment, let’s assume the cavalry isn’t coming. What can you do?
- Stop looking for the cause (it’s a waste of time, truly, it is).
- Realize there is no magic bullet and that in the end YOU HAVE TO DO IT.
- Realize there is no overnight fix, get in the fight, you CAN WIN IT.
- Start working on your health right now. Make the proper changes that I and others have been talking about, the kind that are very good for your overall general health.
- Don’t take dangerous, risky things.
- Realize that we (myself, friends on this blog, and others in the Morgellons community) are here, suffering right along with you, reaching out to you, trying to help you.
- Calm your spirit. Please, I sense so much of fear in some of the emails I receive and that is normal, I know. However, the FEAR of Morgellons can at times be worse than Morgellons itself, the stress, the anxiety, you know what I’m talking about.
- Get outside, don’t stay in trapped in your house afraid you will spread this all over, it’s depressing. Resolve right now to start living your life again, literally take it back by force. The more you start living your normal life the less time you have to dwell on Morgellons, it works, it really does.
If you are new around here please see this list of blog posts https://morgellonspgpr.wordpress.com/all-articles/ and read the ones in “red”, that is a great place to start.
God bless you all
Mr. Common Sense