I would like to extend my thanks to those who helped me along my way. If I leave anyone out please forgive me. Regardless of what you may think of this list I am grateful to them all as it was little pieces from everyone, including not only their wisdom but products too that led me out of the Morgellons nightmare. I fully realize that there is no one path for everybody. Please do not think this is a list of things that if you do you will get better, that is not the purpose of this post.
After realizing I had Morgellons the first person I spoke too was Trisha Springstead, she sent me her protocol and comforted me greatly on the phone. It was after using her green soap bar (the one you apply after the shower which kind of covers your skin with a oily coat) that I first became crawly free. Of course, it would return later but I never really stuck with anything back then, I was in such a panic.
I met Russell Altman of NutraSilver and for quite some time I would call him at my wits end, crying, in sheer panic, telling him what was happening to me. I needed somebody to tell me everything was okay and that I was not going to die and that Morgellons wasn’t all these horrible things I was reading about in the forums. I can tell you if not for that voice during that time I might have gone over the edge. NutraSilver did kill something off in me that had been there since I had Lyme in 1992, I suspect it killed off a massive candida load from doing years of antibiotics for Lyme (which interesting enough I only began to recover after getting off antibiotics). I actually think I killed the Lyme a long time before that and was dealing with the aftermath of long term antibiotic use from that point on, but I digress.
Then I joined a Yahoo Morgellons group called Finding1cure and was helped greatly by Penny and someone that went by the name of GulfCoastDame. Penny was a role model for us all, she had Morgellons and had it bad, but she was recovered. Not only that, but she stuck around and posted her recipe known as “Penny’s Recipe” and was always optimistic and told us like it was, and that is, it’s not an overnight fix, it can take a long time, even years to reverse but that we could do it. Though I wanted a magic bullet I suspected Penny was right. Penny is still there today helping out, so before I arrived she was there helping and comforting and is still there doing the same thing today.
Also John “Blue Skies” or jwf from LymeBusters. I learned a lot from John, he recovered entirely from Morgellons and did so using all natural products and that always kept me going knowing that it was possible. John also knew a ton about natural products. There were many others on LymeBusters too that helped me, including Sue Laws who has since passed on.
I then did a consult with Dr Staninger and learned a lot of very valuable stuff. Probably the coolest thing about Dr Staninger is that she is very calming, not alarming, excitable or anything like that. I remember telling her some of the issues I was dealing with and she could immediately suggest something to try, and NAC was one of them, and it eventually became a pillar in my arsenal. I purchased the FIR heating pad from her as well. Although I could call her on the phone I was careful to not take advantage of her time. Dr. Staninger put out a press release just yesterday interestingly enough.
I also spoke to Dr. Susan Kolb a few times on the phone as well. Like Dr. Staninger, Dr. Kolb is very soothing to talk to. I cannot say exactly why that is but whenever I spoke to Dr. Staninger or Dr. Kolb I knew in my heart I would make it, they were not alarming in any way, and I cannot stress enough how comforting it is to someone who’s world is falling apart at every turn. I also picked up some interesting tips from Dr. Kolb.
It was around this time and after having a few of my posts censored on certain forums that I realized that I needed my own voice beyond the reach of any of the Morgellons cults so I started this blog. I could post what ever I felt like without the fear of some group coming down on me, and if they did (and they did) I could block those voices from dragging us all down. That’s exactly what I did (even yesterday I was attacked and accused of spreading misinformation and so on by one such cult). At least here on this blog, these cults do not control the message. Enough said on that.
When I first started blogging I was still desperately searching for the cause, you can tell this by reading my first post, and my 2nd post and so on. But eventually all the research led me to suspect Acetaldehyde and Dr. Staninger suggested NAC for that and boy did that make a difference for me. I slowly began to start thinking more about healing than the actual cause and with some nudging from certain folks (many who wish to remain in the background unmentioned) I began to consider the terrain theory and whether it was truly possible that fixing my terrain was my path to healing. I knew that our bodies seemed to be like rotting logs and that seemed to fit the terrain theory very nicely so I began to research this concept.
When I made my first “Terrain” post and mentioned all the things I was taking John Burgstiner of Logos Nutritionals chimed in and in large part validated my thinking. I honestly don’t know to this day how I came to pick the arrangement of things I did? I only know that it started to really work. If I knew half of what John forgot about nutrition, health, and supplements I would be a genius. Also, John has let me call him on the phone and pour out my heart during some very dark times and I am forever grateful for that. John is a very strong Christian and has always contacted me when he knew I was down.
Also, I met Joseph Keleher who has done some excellent writing for this blog and his own, he wrote the History of Morgellons and is a great researcher, some of his work played a key role in court hearings regarding disability due to Morgellons. He is one of the kindest guys I know.
I then became aware of the NanoTransformation team, they seemed to know way more about the underlying cause or causes of Morgellons than any other group and best of all, they weren’t espousing any crazy theories. They too pulled from many sources, including Dr. Staninger. I followed some of their advice and added MSM (I chose OptiMSM) and Coconut Oil and that was what finally did it for me. Granted, I was in pretty good shape Morgellons-wise when I added these two items. The MSM seemed to give me a ton of energy and made me feel better (though initially I did experience a herx from it so start slow if you take it). The Coconut Oil I think killed off the fungal aspect of this. My skin immediately cleared up and whatever Morgellons is or was it doesn’t seem to be even trying to come back.
Even now new folks are arriving on the scene. For example, the Free Morgellons e-Book by Judith Knilans was recently published. I have been hearing nothing but good things regarding her book and will be reading it in it’s entirety very soon.
I think what we are seeing is a counter revolution within our community. And by that I mean folks aren’t waiting on the so called leaders of our community (I’m not referring those I’ve mentioned above). We have taken the message to the streets and to the people. In fact, I think we know that waiting on some discovery as to cause is probably not coming nor is it necessary. You can recover your health, but do it slowly and do no harm because it’s not a quick process.
So, I owe my fortunate situation to the Good Lord above first of all, as I know He led me though this. All these seemingly fortunate moves, meeting the right people, receiving good advice, stumbling upon very effective supplements were just moves on the chessboard. To me at the time they were all just lucky breaks, but I know now they were not. And though what worked for me I know won’t work for everybody at least we all have a voice here and can share our thoughts without all the infighting.
I thank God I was not stubborn and didn’t suspect everyone as a snake oil salesman. Some of those I learned the most from I didn’t agree with as to the cause of all this, nonetheless, I was smart enough to realize they were far more knowledgeable when it comes to addressing the condition than I was. There are also many idividuals I speak to via email quite regularly and you know I owe you too.
Even my anxiety is lifting, and now I wonder if it was driven by some physical imbalance, perhaps the die off toxins of Morgellons, who knows, I don’t quite understand it all yet. I’ve been up and down since realizing my symptoms were all really gone and much to my surprise, the first feeling was a sense of loss? Oh, I wasn’t missing Morgellons, but suddenly of huge chuck of “me” that existed to battle this thing was no longer needed, a strange sense of purposeless came over me. But that is passing.
I plan to do a very detailed post soon, I guess it will be the Poor Mans Protocol II (PMP II) which will outline the supplements I think were key adding in the some of the final things that did the trick for me. It took me three years after I realized I had Morgellons to recover, and I think you have Morgellons long before it manifests.