On April 22, The LA Times asked Joni this question:
You’ve come out in the media as a sufferer of a controversial condition known as Morgellons. How is your health currently?
I have this weird, incurable disease that seems like it’s from outer space, but my health’s the best it’s been in a while, Two nights ago, I went out for the first time since Dec. 23: I don’t look so bad under incandescent light, but I look scary under daylight. Garbo and Dietrich hid away just because people became so upset watching them age, but this is worse. Fibers in a variety of colors protrude out of my skin like mushrooms after a rainstorm: they cannot be forensically identified as animal, vegetable or mineral. Morgellons is a slow, unpredictable killer — a terrorist disease: it will blow up one of your organs, leaving you in bed for a year. But I have a tremendous will to live: I’ve been through another pandemic — I’m a polio survivor, so I know how conservative the medical body can be. In America, the Morgellons is always diagnosed as "delusion of parasites," and they send you to a psychiatrist. I’m actually trying to get out of the music business to battle for Morgellons sufferers to receive the credibility that’s owed to them.
The Full Interview is HERE
I wish I could spend 30 minutes talking to Joni on the phone, my guess is what we’re are accomplishing here could be of great benefit to Joni. I hope she does join the battle for sufferers, there are so many that need help. Special thanks to the little bird that sent me this story.