Just what is the definition of the word “new” anyway? This page on the CDC Site went up one year ago today. After one year do you think this should still be called “new” information? Well, if you watch this Video you can see by the timeline that “Yes’, when it comes to the CDC this still might be considered “new”.
Let’s take a look at a comment from the recent Washington Post article.
CDC experts are preparing the final draft of their report, which they hope to submit for publication in a peer-reviewed scientific journal sometime in early 2011.
Notice the language, “draft“, “hope to submit“, “peer review“. To me at least, these are all signs that no real help is coming from the CDC. In fact, I would say just the opposite. If you were researching a disease and stumbled upon the cause would you hide that truth for years on end? Probably not, unless you have a reason to actually hide it. In fact, every day we read stories in the news where researchers stumble upon the cause of some condition and then say more research is necessary. I mean honestly, what’s the big deal? If you find the cause or even think you have found the cause you announce it and give hope to those suffering, isn’t that the reason for the research? Even if you’re in it only for the money wouldn’t you want to alert all your potential customers?
On the flip side, if your study found nothing why would you drag your feet year after year and take forever to publish a peer review journal to say “We found nothing”?
At this point, the only conclusion I can come to from simply looking at the facts is that the CDC is purposely delaying, stalling, and dragging its feet, and they do have information they are not sharing. It’s hard for me to imagine anyone being capable of doing such a terrible thing, but then, unless you’ve been through what we have you couldn’t possibly understand the horror of it all.
Look at this quote from the recent article:
The CDC won’t say right now, for fear that releasing information might jeopardize the study’s publication. Mark Eberhard, director of the CDC’s division of parasitic diseases, said, “We were very clear from the outset that no one study, not even this one, would likely provide the whole answer.”
What information could they have that would cause them to say “fear that releasing information might jeopardize the study’s publication“? That doesn’t even make sense; releasing information would jeopardize its publication? Really? Interesting that the word “fear” is used. Also, notice that they say “The CDC won’t say right now …” . Won’t say what exactly? Finally, Mark Eberhard states that
“no one study, not even this one, would likely provide the whole answer.”
Is Mr. Eberhard stating they have part of the answer? I think he is. Finally, and notice, they never use language such that what they are doing is to “help those who are suffering”, never have they used such language or shown any compassion. Whoever the “stakeholders” are that they spoke of in regards to the study you can clearly tell they are not the sufferers, we are not the stakeholders, there is somebody else with something at stake. None of the language used by the CDC indicates even the slightest sympathy for Morgellons sufferers. It’s as if the study is being done for, and run by, somebody else with a stake in the outcome. Even their recent comment indicates the goal (and worry) is the studies publication, not those suffering. Why even publish if there’s nothing to say? If there is something to say that could help those suffering from this horrible condition then they are causing great harm by not releasing that information. Not only does this delay affect the health of those suffering but if they are allowing the DOP diagnosis to be continually applied to those suffering (knowing full well that there is indeed a cause) I believe disciplinary action might apply.
For those suffering you are your best advocate, my prayers are with you as are many others. I think our friend Joe said it best on a recent post:
“Given the current situation for Morgellons and all it represents, ultimately the sufferers truest hero is right in the mirror. I know what I went through. I did thank plenty along the way, but it the end it was sorting through what made sense and investing time, energy and money in getting well. Decisions I made on my own.”
I’ll leave you with this video, never give up, fight like hell for your health, it’s all worth it.