First, let me say that I’m finally working on a “Welcome” page for first timers who have recently discovered that they suffer from this condition. It will be a page that urges them to remain calm, not try dangerous self treatments, not to believe in the wonder cures, and to avoid reading forums that are full of scary and fantastic information. It’s not that I want everyone to come to this site, there are other good sites and I link to many of them in my Blogroll section. I think the Welcome Page is going to be a wonderful addition to this site.
Also, I rarely ever have have to refuse comments on threads on this site. It’s amazing how wonderfully grounded you all are. I recently disallowed two posts and my apologies go out to those people. One was from Deborah from CT with claims of a doctor curing all manners of disease. Now, it might be true, but it might not be, and I don’t want sick and desperate people coming to this site and getting taken for what little money they have left. Also, another post was from a supposed participant in the CDC Study, the story was so fantastic that I could not post it, sorry Matthew. Both Mathew and Deborah are certainly welcome here, but I have to watch I allow to be posted here, to protect the readers and to prevent this site from being discredited.
As far as the campaign goes, things are going well, hopefully in a month or so the entire plan will be revealed and you will be able to see how you can help. Not surprisingly, the campaign kick off video was not all that well received on many Morgellons forums, it seems the camps just cannot come together still to this very day. I made a post on the MDR and the thread was locked after 4 posts, the post somebody made on LymeBusters though read many times had no comments for days, finally, today, I see someone posted this message to it.
wow…..sad to see no one else responding to this post. not surprising just sad. thanks for posting pdidit and thank you mr. commonsense, you have my full support. please contact me if i can help in anyway.
This has no effect on the campaign, trust me, we are going to be successful on this. Please don’t post negative responses about certain forums, they play a role, and for those that can handle the rough and tumble atmosphere, it works for them.
Meanwhile, everyone is busy devouring this outlandish (“hogwash”) story about a CDC worker on the inside who became infected with Morgellon’s (read here …) that they were studying. It’s a load of absolute hogwash and the kind of nonsense I refuse to blog about or allow to be posted here. If you want to read that kind of stuff you’ll have to surf the forums. Yes, I did post a link to it here but only to make a point. I have nothing against those that post those kinds of stories. It’s not a matter of disliking a person, it’s a matter of maintaining credibility and protecting the readers from undue anxiety. Also, stories like that if believed, are enough to make one go out and try all kinds of things without a doctors supervision, and that is exactly the kind of mistake I hate to see people make. I know first hand, because I was that desperate person once, and did those things. That is part of why I started this blog. But remember, I am not the keeper of the truth, anything I post should be filtered by your truth detector. And as always, work with your doctor on any protocol you may be trying.
I hope to have my “Welcome” page posted within a week.