First, my apologies for not carrying through with the campaign. Let me explain to the idea behind the campaign get your feedback.
I know from the emails I receive and posts on this blog and other sites that most Morgellons patients drift from Dermatologist to Dermatologist and receive little to no help.
The plan was to create a simple but professional flyer, two pages maybe even only one, which was along the lines of a missing person report. It would have a photo much like this one.
HAVE YOU SEEN THIS PERSON?
They might have recently visited your office. This person would have been trying to get help for skin crawling sensations, biting sensations, might have had skin lesions, and even brought in a container full of samples.
This person was probably very distraught, not thinking clearly, suffering from severe anxiety, and convinced they were infested with bugs or parasites.
We are a group that is very concerned about this person who is likely to do harm to themselves if they try some of the crazy remedies for this condition which can be found on the internet. They might also be further harmed by being taken in by some of the bizarre and outlandish stories surrounding this condition.
If you have seen this person our only request is that let them know that they are others like them who are managing this condition, some even resolving it. Try to calm their anxiety and let them know they should maintain composure, and not destroy their family or marriage, or waste precious time trying to convince everyone around them that this condition is real … (much more but I’ll stop here)
I’ll spare you the rest but the idea was to enlist everyone to send this flyer (which would be made available to you) to all of the Dermatologist in our local town or area. There are not as many Dermatologist nationwide as you might think, I have the complete list.
This wouldn’t be a campaign to get people to visit this site, in fact, no websites would be mentioned, we would only offer advice to the Dermatologist that might help them help this person. It would be a way for us to educate many about the people they’ll see, to recognize the pattern, and offer a lot of advice many of us have learned the hard way.
We would in effect, be providing Dermatologists with some tools to help them help those who are suffering. Our goal would not be to convince the Dermatologists that this condition is real, merely to let them know what these patients are going through and likely to do if they are not helped.
I was going to keep a list on a separate page on this site of all of the Dermatologists who received the flyer. Volunteers would email me the Dermatologists they mailed the flyer to and I would update the page on this site.
Now that the CDC report is out and has basically called this a psychological problem by nature, I am not sure such a campaign wouldn’t simply fall on deaf ears. Many I spoke to in private concerning this campaign didn’t think it went far enough or felt we needed to direct them to some “safe” sites”. I think directing them to any site is a show stopper because the Dermatologists is then on the hook for any undesired consequences or bad advice that might be offered on one of those sites. I think this would have to be a selfless campaign where the only goal is to help those that out there right now at their wits end.
Please don’t go off and start sending letters, if we are going to do this it must be a coordinated effort. If you disagree with this approach don’t hesitate to comment. Anyway, that was my plan.